Alpha-1 Plus at the Rare Disease Day 2015

Alpha-1 Plus has participated to the Rare Disease Day 2015! On February 24, 2015, Frank Willersinn, President of Alpha-1 Plus, attended the Policy Event and Gala Dinner organized by EURORDIS for the Rare Disease Day 2015, at Brussels. The Rare Disease Day is an annual awareness event coordinated by EURORDIS. Read more about the Rare Disease...
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Alpha-1 Plus Joins EURORDIS

Alpha-1 Plus has joined EURORDIS as Associate Member! EURORDIS is a non-governmental patient-driven alliance of patient organizations, representing 667 rare disease groups and associations, in 61 countries, covering 4000 diseases. EURORDIS works to build a strong pan-european community of patient organizations and people living with a rare disease,  to be their voice at the European level, and – directly or...
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Alpha-1 Plus Joins Alpha-1 Global

Alpha-1 Plus has joined Alpha-1 Global, a communication platform for the global Alpha-1 community with the goal to connect Alpha-1 organizations and patients around the world to share ideas, strategies, and tools on three main topics : awareness, detection, and access to care. Frank Willersinn, President of Alpha-1 Plus, has also subsequently been nominated Chair of...
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