Mental well-being and lung health
If you live with a lung condition, you might be more likely to experience problems with your mental health in... Read More
About us
Who we are
Not-for-profit patient-driven organization. Provide support and information for patients with Alpha-1 and their families. Promote education and awareness of the disease. Advocate for Alpha-1 patients and community.
Healthcare Professionals
Decreased Risk of Ischemic Heart Disease in Alpha-patients (ZZ)
A Swedish study shows that patients with a severe AAT-deficiency have a lower risk of developing incident ischemic heart disease... Read MoreConsequences of abrupt cessation of augmentation therapy
In Ireland, Oliver J. McElvaney et al studied the effects of sudden cessation of Alpha1-Antitrypsin replacement therapy. In September 2017,... Read MoreAlpha-1 Awareness Day
It’s almost Alpha-1 Awareness Day. This day is meant to raise awareness for those with alpha-1 antitrypsin deficiency. Too many... Read MoreOpen letter Platform of Plasma Protein Users
PLUS, the Platform of Plasma Protein Users, sends an open letter to European Member States on the need for a... Read MoreOpen letter EURORDIS
In an open letter, EURORDIS-Rare Diseases Europe implores policy makers and authorities to take action to protect people living with... Read MoreNew article in New England Medical Journal
Congratulations to Pavel Strnad, M.D., Noel G. McElvaney, and David A. Lomas, Sc.D. on co-authoring a review article published today... Read More
Newsletter
Subscribe to our mailing list and stay informed and connected!